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Björn Hessing
Björn Hessing
Survivor Deutschland e.V.
Germany

Public Documents 1
Financial and Legal Burdens and Discrimination After Surviving a Childhood Cancer Dia...
Björn Hessing
Jette Luedersen

Björn Hessing

and 6 more

February 21, 2025
Background: Since survival rates have improved over recent decades, there is an increasing number of childhood cancer survivors. Besides medical late effects of the therapy survivors experience financial and legal burdens and discrimination linked to their cancer history. The objective of this study was to examine the prevalence and types of discrimination faced by childhood cancer survivors in Germany. Methods: Therefore, we conducted a survey in the German childhood cancer community. Results: Within 111 participants, 76.6 % (n=85) reported experiencing at least one form of discrimination. The most common areas of discrimination involved various types of insurance coverage (51,4 %), employment (27,9 %) and educational matters (16,2 %). Conclusion: Our findings highlight the significant prevalence of lifelong financial and legal burdens and discrimination among childhood cancer survivors. It shows the urgent need for education, awareness campaigns regarding cancer survival and legal measures to end discrimination and to establish equal treatment in terms of social and financial issues. Our results contribute to the ongoing discussion surrounding the “Right to be Forgotten” and advocate an implementation in Germany.

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