loading page

Piloting a Patient-Driven Online Survey to Better Study Cancer in Adolescents and Young Adults (AYA) in the United States
  • +5
  • Lynda Beaupin,
  • Scott Borinstein,
  • Nicholas Yeager,
  • Denise Rotitka ,
  • Jennifer Schweitzer ,
  • Odochi Uwazurike,
  • John Senall,
  • Peter Shaw
Lynda Beaupin
Johns Hopkins All Children's Hospital
Author Profile
Scott Borinstein
Vanderbilt Children's Hospital
Author Profile
Nicholas Yeager
Nationwide Childrens Hospital/The Ohio State University College of Medicine
Author Profile
Denise Rotitka
Roswell Park Cancer Institute
Author Profile
Jennifer Schweitzer
Roswell Park Cancer Institute
Author Profile
Odochi Uwazurike
Roswell Park Cancer Institute
Author Profile
John Senall
Mobile First Media, LLC
Author Profile
Peter Shaw
Children's Wisconsin

Corresponding Author:pshaw@mcw.edu

Author Profile

Abstract

Adolescents and young adults (AYAs) with cancer are a unique patient population in oncology. To better understand the current landscape of AYA cancer, an opt-in, secure online survey was offered to a general population of AYA patients and survivors. A 28-item online survey was designed for cancer patients and survivors diagnosed between the ages of 18 and 39 years. 590 patients registered and 447 (76%) completed the survey. This online survey was feasible and can serve as an effective method to survey the AYA cancer population.