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Translation And Adaptation Of CF R.I.S.E Transition Program To Turkish
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  • Merve Selcuk,
  • Yasemin Gokdemir,
  • Ela Erdem Eralp,
  • Almala Ergenekon,
  • Cansu Yılmaz Yegit,
  • Mürüvvet Yanaz,
  • Aynur Guliyeva,
  • Mine Kalyoncu,
  • Seyda Karabulut,
  • Neval Metin Cakar,
  • Burcu Uzunoglu,
  • Gamze Tastan ,
  • Damla Kocamaz ,
  • Ozge Kenis-Coskun,
  • Ilknur Gorgun,
  • Randall Messier,
  • Pamela Mertz,
  • Fazilet Karakoc,
  • Bulent Karadag
Merve Selcuk
Marmara Universitesi Tip Fakultesi

Corresponding Author:dr.merveselcuk@gmail.com

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Yasemin Gokdemir
Marmara Universitesi Tip Fakultesi
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Ela Erdem Eralp
Marmara Universitesi Tip Fakultesi
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Almala Ergenekon
Marmara Universitesi Tip Fakultesi
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Cansu Yılmaz Yegit
Marmara Universitesi Tip Fakultesi
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Mürüvvet Yanaz
Marmara Universitesi Tip Fakultesi
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Aynur Guliyeva
Marmara Universitesi Tip Fakultesi
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Mine Kalyoncu
Marmara Universitesi Tip Fakultesi
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Seyda Karabulut
Marmara Universitesi Tip Fakultesi
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Neval Metin Cakar
Marmara Universitesi Tip Fakultesi
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Burcu Uzunoglu
TC Saglik Bakanligi Pendik Egitim ve Arastirma Hastanesi
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Gamze Tastan
TC Saglik Bakanligi Pendik Egitim ve Arastirma Hastanesi
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Damla Kocamaz
Marmara Universitesi Egitim ve Arastirma Hastanesi
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Ozge Kenis-Coskun
Marmara Universitesi Egitim ve Arastirma Hastanesi
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Ilknur Gorgun
KIFDER
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Randall Messier
Institute for Excellence in Health and Social Systems (IEHSS
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Pamela Mertz
Institute for Excellence in Health and Social Systems (IEHSS
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Fazilet Karakoc
Marmara Universitesi Tip Fakultesi
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Bulent Karadag
Marmara Universitesi Tip Fakultesi
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Abstract

Background: Previously, Cystic Fibrosis (CF) patients faced a limited life expectancy, but significant medical advances now highlight the need for successful transition programs from pediatric to adult care. Methods: The aim of this project was to implement the CF R.I.S.E. program, a structured transition program, in a CF center with limited resources at Marmara University. The program was adapted and translated into Turkish with the permission of the Cystic Fibrosis Foundation. A multidisciplinary team collaborated in the translation and adaptation process and educational materials were developed for patients and families. Results: Successful implementation of the CF RISE program was achieved within six months. A pilot study with randomly selected patients revealed positive feedback indicating the effectiveness and understandability of the program. The program facilitated strong collaboration between pediatric pulmonologists, CF nurses, dietitians and patient representatives. However, challenges were encountered due to the lack of a designated social worker, which affected patients’ access to expert guidance on social security and disability rights. Conclusions: The CF S.O.B.E. program was successfully adapted and implemented at the Marmara University CF Center in Turkey. The program is expected to have a positive impact on patients’ knowledge and self-care skills over a period of 1.5 years. It is aimed to make the program a routine practice in the center and to expand the collaboration with adult clinics. Further studies are needed to assess its long-term impact and applicability in different health settings. The ultimate goal is to disseminate the program’s resources and promote structured transition practices nationwide.