Participant characteristics
A total of 106 participants (89 adults and 17 adolescents) with a
confirmed diagnosis of CF were invited to participate in the study. This
represented 48% of those eligible. Forty adults and 3 adolescents did
not respond or return the questionnaires; 8 adults and 3 adolescents
were not willing to participate and one adolescent died within the study
period. Non-responders were comparable in their demographic and medical
characteristics. Thus, a total of 51 adults and adolescents completed
the study.
Table 1 presents the demographic characteristics of the adults and
adolescents with CF. Mean lung function of adults was below average
(< 80%); mean BMI of adults and adolescents was considered
healthy (between 18.5 – 24.9 kg/m2). The majority of
participants used CFTR-modulators and were pancreatic insufficient.