Participant characteristics
A total of 106 participants (89 adults and 17 adolescents) with a confirmed diagnosis of CF were invited to participate in the study. This represented 48% of those eligible. Forty adults and 3 adolescents did not respond or return the questionnaires; 8 adults and 3 adolescents were not willing to participate and one adolescent died within the study period. Non-responders were comparable in their demographic and medical characteristics. Thus, a total of 51 adults and adolescents completed the study.
Table 1 presents the demographic characteristics of the adults and adolescents with CF. Mean lung function of adults was below average (< 80%); mean BMI of adults and adolescents was considered healthy (between 18.5 – 24.9 kg/m2). The majority of participants used CFTR-modulators and were pancreatic insufficient.