Quality of Life (CFQ-R, Dutch version)30
The Cystic Fibrosis Questionnaire Revised (CFQ-R) is a self-report
questionnaire to measure the physical, emotional, and social impact of
CF and includes the following twelve domains: physical functioning,
emotional functioning, social functioning, role functioning, body image,
eating disturbances, treatment burden, health perceptions, respiratory
symptoms, digestive symptoms, weight and vitality. In this study two
different versions of the CFQ-R, adapted for the age of the patient,
were used: CFQ-R 12-13 yrs. and CFQ-R 14-adulthood. This instrument is
considered the “gold standard” quality of life measure for CF. It has
well-established reliability and validity,31differentiating those with mild, moderate, and severe CF and showing a
response to therapeutic interventions.32,33 The Dutch
version of the Cystic Fibrosis Questionnaire Revised (CFQ-R) has been
shown to have robust internal consistency and psychometric
properties.30 Higher scores indicate better quality of
life.