Questionnaires
Participating survivors and siblings were asked to complete an updated
questionnaire on general health and lifestyle. Survivors and siblings
who participated in the LATER 1 questionnaire study in 2012—2014
(Teepen at al. submitted) received an abbreviated version of this
questionnaire focusing on main health outcomes only (Supplemental
information Table 3). Several other outcomes were assessed with, mostly
validated, questionnaires (Supplemental information Table 4). Each
survivor was invited to complete outcome-specific questionnaires for
sub-studies for which the survivor was eligible. Questionnaires were
spread in time (before, during and after the outpatient clinic
recruitment visits) in order to limit the burden for survivors. Siblings
of survivors also received questionnaires on psychosocial outcomes,
fatigue, and skin health and parents of survivors received
questionnaires on psychosocial outcomes.