Dependent Variable
The PedsQL 3.0 SCD module, a disease-specific measurement tool, was
specifically selected for this research study to examine the HRQOL of
the participants. There are two separate questionnaires used – one for
our child participants between 8 - 12 years old and one for our teen
participants 13 -17 years old. Both questionnaires contain nine
different dimensions, 43 items total, with each dimension assessing the
patient’s pain, worry, emotions, treatment, or communication. The total
score for the scale, which are reversed scored, was calculated by using
the sum of all items divided by the number of items answered. Lower
scores on the questionnaire suggests more problems related to HRQOL. The
Cronbach’s alpha score (.95) shows good reliability and
intercorrelations with PedsQL Multidimensional Fatigue Scales and PedsQL
Generic Core Scales reported medium to large construct validity with
scores between .30 and .50 (Panepinto et al., 2013).