Intervention, outcome and follow-up
Five patients had surgical excision, comprising excision biopsies for 4 plexiform neurofibromas of the lid and neurosurgery for the excision of an intracranial, intraventricular glioma. All patients were successfully followed up for at least 6 weeks postoperatively. Surgery involved the ophthalmologist alone or the ophthalmologist as a member of an interdisciplinary surgical team and neurosurgeons alone in 1 case. A 29-year-old male with a plexiform spinal neurofibroma, had successful surgical resection and physiotherapy. He was managed in a multidisciplinary team. At least 6 cases recommended for neuro-radiological imaging and surgery, were unable to have surgery and were subsequently lost to follow-up.