Primary ciliary dyskinesia is an incurable, rare, inherited, chronic condition. Treatment includes regular clearing of airway mucus, aggressive treatment of infections and management of hearing loss. Caregiver burden has not been explored, hence we interviewed 18 English speaking mothers and 6 English speaking fathers of children under 6 years who were diagnosed with PCD around the world. The parents described how the child's diagnosis, treatment regimen, and health status impacted their life. They discussed the impact of the COVID-19 pandemic and they talked about the different ways they cope with challenges that arise. The need for integrated social care is discussed.

Environmental education, field interventions and entertainment-education have been deployed to raise ecological consciousness in society; and studies tend to focus more on impacts, audiences and social change; often overlooking the critical encoding segment in the communication chain. If animistic or romanticist ‘immersion in nature’ engenders eco-friendly dispositions, it’s also possible that behavior change can come from immersing change-agents (cast/crew) in natural environments to enhance eco-consciousness and improve encoding and communication competencies. This study used participant observation within natural immersive production environments; and random interviews to assess eco-behavior change in key cast/crew in the production of Linda’s Joint, a radio serial on gorilla protection in Cross River State, Nigeria. Findings show that majority of cast/crew imbibed eco-friendly attitudes, showed improved encoding competencies and became convinced change-agents following their participation in the production. Significantly, the study strengthens pedagogical values of loop-writing approaches and experiential learning especially in ambient production locations.

A document by Sintayehu Belay. Click on the document to view its contents.

ENGAGE is in development as a web-based observation system with core features we believe will facilitate its use as a scalable assessment-to-action coaching and instructional support system in preschool classrooms. ENGAGE assesses adult interaction practices and children’s active engagement such that classroom teams receive data to inform their intentional design and delivery of embedded instruction that can be made more effective for children’s developmental needs through differentiation and intensification. For this study, we describe important precursors to evaluating other psychometric properties within an argument-based approach to validation. We used iterative cycles to gather evidence to refine and validate the content of our measurement targets (i.e., adult interaction practices and child active engagement) as well as constructs (i.e., groupings of practices by theorized mechanisms). Following two iterative rounds using online questionnaires, responses from participants representing intended users of ENGAGE generally demonstrated consistency with our definitions and conceptualizations, with more varied responses for child engagement. We discuss our procedures and results in terms of reducing measurement error that may be attributable to measurement targets in advance of future examinations of observation conditions (e.g., observer training, session duration) and situational variance (e.g., instructional pedagogy, adult-child ratios) that are often influential within observation-based assessments.

Violence against women (VAW) affects at least 35% of women worldwide. The need to combat VAW is seemingly noncontroversial: As existing work shows, ideology does not explain governments’ propensity to adopt anti-VAW legislation. Yet, effectively implementing anti-VAW legislation requires complex policy frameworks at odds with conservative values. Voters’ preferences can meaningfully influence policy outputs, so can electoral conservatism make women more vulnerable to violence? Employing data from 5,570 Brazilian municipalities, we find that conservatism in the electorate is associated with the adoption of fewer anti-VAW policies. With data from a nationally-representative survey of Brazilian respondents (N=2,086), we then show that conservative voters are less likely to prioritize the need for tackling VAW. That is, the adoption of fewer anti-VAW policies in conservative municipalities reflects conservative voters’ policy preferences. Critically, our results suggest that in contexts where the electorate holds conservative preferences, policy responsiveness may incur costs to women’s lives.

Spatial version of multivariate Fay–Herriot model is introduced and small area predictor under this model is proposed. The mean squared error (MSE) estimation of the proposed small area predictor is also developed. The empirical performance of the proposed small area predictor and the MSE estimator are evaluated through simulation studies. The empirical results clearly show that the proposed small area predictor outperforms the existing predictors. The proposed MSE estimator tracks the actual value of MSE reasonably well with acceptable coverage rate. An application to estimate the disparities in food and nutrition intake from the 2011–12 Household Consumer Expenditure Survey data collected by the national sample survey office of India is also presented.

This file has tremendous importance to research and knowledge production of responses and implications of Covid-19.

The field of my scientific interests: problems of musical emotions, musical sense and analysis of music. I am the author of monographs “The Intonation Nature of Music,” “On the Meaning of Music and The Musical Sense.” I have developed a unique method for the improvement of musical hearing and perception.

Human-environment relationship is a prominent discourse in many academic disciplines. Initial studies in social sciences viewed nature being independent of society but gradually researchers proved that both are related and dependent upon each other. Current studies confirm the association between humans and the environment which changes with time and space. Waste is part of the human environment and is ubiquitous. Climate change, environmental pollution, and vulnerabilities associated with it have been major concerns for policymakers, activists, and academicians across the globe over the past couple of decades. The report of International Solid Waste Association (ISWA) and United Nations Environment Program (UNEP) in 2006 delineated waste management as an important part of urban infrastructure having close relation to issues of urban lifestyle, resource consumption pattern, income level, jobs, socio-economic and cultural factors. According to World Bank estimation in 2018, waste generation will increase from 2.01 billion tones in 2016 to 3.40 billion tones in 2050. However, despite its significance in the academic world, the waste remains under-theorized. The meaning and value of waste vary from person to person and also from culture to culture. Rapid urbanization and globalization have led to the social, economic and political crisis with an increased amount of waste. The multidimensional nature of waste creates the need for interpreting it in a distinct way. With the help of theoretical pluralism, this paper aims at explaining the concept of waste through the theoretical lens of political ecology and actor-network theory. The political ecology perspective aims at explaining the environmental issues by analyzing the political-economical causes and provides the alternative for solving the issue. The actor-network theory explains the environmental issues by studying the association among actors at various scales with a special focus on the power interest of the actors as the cause of such association. These two approaches can be integrated based on the pragmatic approach and can help in understanding the complex reality of waste. The paper views that societal problems like waste can be studied with the use of both these theories with a firm hold on the context as they tend to transcend the dualism between nature and society.

It is reported that women’s pupils dilate when they see a baby; it is unclear if this pupillary response is caused by the perception of cuteness itself. Since many objects besides babies can be perceived as cute, we investigated whether the perception of cuteness, or the type of object observed, is related to pupil dilation. In the first experiment, female participants were requested to rate the subjective cuteness of greyscale pictures of objects such as animals and foods; their pupil sizes were measured. The results showed a significant positive correlation between perceived cuteness and participants’ pupil dilation. In the second experiment, participants rated the cuteness of images of female faces. Results revealed a significant negative correlation between perceived cuteness and pupil dilation. In our study, perceiving cuteness enlarged female observers’ pupils except when observing female faces. Positive reactions associated with cuteness may be premised on the existence of unconscious perceptual alterations and physical responses.

This paper is a proposal for the nurse to patient ratio policymaking. Aiming to reach policymaker to step for the change in national rules and standardization of the policy on national levels.

The main purpose of the paper is to elaborate the cognitive frameworks using which social entrepreneurs (i.e., social bricoleurs, social constructionists and social engineers) identify meaningful patterns leading to their identification of divergent opportunities. Individuals develop cognitive frameworks (prototypes) via experiences which enable them to recognize patterns leading to opportunity recognition. This study will propose how different types of social entrepreneurs use their distinctive cognitive frameworks to identify and recognize patterns relevant to their respective goals. Future directions for research and practical implications for entrepreneurs are provided.

This paper provides a critical look at the definition of CSR based on the subject matter literature available. Because CSR is an emerging term in both definition and reality, this study aims to illustrate CSR in relation to the different stakeholders and entities termed as CSR ecosystem in this study. Furthermore, this study also offers an outline of factors, interactions and contexts under review, such as CSR, Section 135 of the Indian Companies Act 2013, the effect of the Act on corporate bodies’ CSR operations, the impact of CSR on societal and environmental concerns, contrasting CSR schools of thinking, and gaps in the views of management, government, shareholders and stakeholders.

Many government responses to the coronavirus-pandemic have been marked by attempts at expertization and scientization. Particularly, politico-epistemological authority is being given to the behavioural science community consulting government. This article critically scrutinizes this most recent wave of behavioural expertization. Taking developments in the UK and the Netherlands as our case-studies, we shed light on the disparate ways in which behavioural expertise is being (re)shaped during COVID-19. Some of these ways point at processes of behavioural expertise ‘drift’, in which the applicability and robustness of this knowledge source gets overstated. Other ways instead point at processes of behavioural expertise ‘thrift’ or ‘shift’, where the knowledge is used only minimally or taken in wholly new and norm-breaking directions. Doing so, we seek to demonstrate the importance of institutional context in understanding how behavioural expertise is currently shaping public policy: underpinning institutional configurations determine whether the expertise is gauged and applied effectively.

In this article focus is put on how politics influences International Law majorly in the form of coercive and cooperative ways like ideological imposition, sovereign self-interest games, humanitarianism, good governance, customs and treaties as well as ways surrounding the solution of international conflicts and dealing with non-state actors. Also, a perspective is put forth upon as to how influence of politics on International Law affects the legitimacy of the International legal order.

To slow down the spread of the Coronavirus, the population has been instructed to stay at home if possible. This measure consequently has a major impact on our daily mobility behaviour. But who is being affected, and how? The MOBIS-COVID-19 research project, an initiative of ETH Zurich and the University of Basel, is a continuation of the original MOBIS study. The aim of the project is to get a picture of how the crisis is affecting mobility and everyday life in Switzerland.

A document by Elisheva Rosman. Click on the document to view its contents.

To slow down the spread of the Coronavirus, the population has been instructed to stay at home if possible. This measure consequently has a major impact on our daily mobility behaviour. But who is being affected, and how? The MOBIS-COVID-19 research project, an initiative of ETH Zurich and the University of Basel, is a continuation of the original MOBIS study. The aim of the project is to get a picture of how the crisis is affecting mobility and everyday life in Switzerland.