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Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium.
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  • Teresa Del Bianco,
  • Georgia Lockwood Estrin,
  • Alexandra Lautarescu,
  • Bethany Oakley,
  • Eliza Eaton,
  • Jerneja Terčon,
  • Sarah Douglas,
  • Jan Roderik Derk Plas ,
  • David Belton,
  • Eva Loth,
  • Mary Doherty,
  • Emily Jones
Teresa Del Bianco
Birkbeck University of London

Corresponding Author:t.delbianco@londonmet.ac.uk

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Georgia Lockwood Estrin
University of East London
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Alexandra Lautarescu
King's College London
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Bethany Oakley
King's College London
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Eliza Eaton
University of Cambridge
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Jerneja Terčon
Community Health Centre Domžale
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Sarah Douglas
University of Cambridge
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Jan Roderik Derk Plas
University of Cambridge
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David Belton
University of Cambridge
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Eva Loth
King's College London
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Mary Doherty
Brighton and Sussex Medical School
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Emily Jones
Birkbeck University of London
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Abstract

Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence. Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent. Our findings reveal that autism is common among consortium researchers, with a substantial proportion reporting formal diagnoses or self-identification as autistic (23%), higher among stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and lower mental well-being among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments. This study underscores the need for greater inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.
26 Jul 2024Submitted to European Journal of Neuroscience
02 Aug 2024Submission Checks Completed
02 Aug 2024Assigned to Editor
02 Aug 2024Review(s) Completed, Editorial Evaluation Pending
02 Aug 2024Reviewer(s) Assigned