Examining Neurodiversity and Inclusion in Neuroscience Research
Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium.
Abstract
Due to the increased emphasis on co-produced and community led research,
neurodiversity within research communities has sparked interest,
particularly within the context of autism research. This study
investigates the presence of neurodivergent researchers within a
neuroscience research consortium, with a particular focus on autism
prevalence. Using survey data collected from active contributors to the
consortium, we examined the self-reported neurodivergent status of
researchers, including formal diagnoses of autism, ongoing diagnostic
processes, and self-identification as neurodivergent. Our findings
reveal that autism is common among consortium researchers, with a
substantial proportion reporting formal diagnoses or self-identification
as autistic (23%), higher among stages below and including postdoctoral
roles (Chi-Square p-value = 0.01). Further, we identified an association
between neurodivergence and lower mental well-being among researchers
(Coef. = 1.93, p-value = 0.002), highlighting the importance of
accommodating neurodiversity within research environments. This study
underscores the need for greater inclusivity and support for
neurodivergent researchers, particularly in the context of neuroscience
that does or does not yet embed participatory research initiatives. By
amplifying the voices of neurodivergent researchers, research
communities can enhance the equity and impact of their outcomes and
foster better public engagement by sharing experiences and understanding
the needs of community members.