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Survey of Healthcare Delivery and Distress in Pediatric Cancer Patients and Caregivers during the COVID-19 Pandemic at a Single Institution
  • +7
  • Sandra Ngo,
  • Laura Sedig,
  • Maria Murillo,
  • Elizabeth Stuchell,
  • Yujie Wang,
  • Amy Edmonds,
  • Ian Wolfe,
  • Sung Won Choi,
  • Rajen Mody,
  • Rama Jasty
Sandra Ngo
University of Michigan Department of Pediatrics and Communicable Diseases
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Laura Sedig
University of Michigan Department of Pediatrics and Communicable Diseases
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Maria Murillo
University of Michigan
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Elizabeth Stuchell
University of Michigan Michigan Medicine
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Yujie Wang
University of Michigan
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Amy Edmonds
University of Michigan Michigan Medicine
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Ian Wolfe
University of Michigan Michigan Medicine
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Sung Won Choi
University of Michigan
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Rajen Mody
University of Michigan
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Rama Jasty
Mercy children's hospital

Corresponding Author:rjasty@med.umich.edu

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Abstract

During the COVID-19 pandemic, pediatric oncology patients, caregivers, and providers were required to adapt to changes in healthcare delivery to minimize the risk of COVID-19 exposure. This study evaluated the impact of the pandemic on oncologic care and patient and caregiver distress by surveying patients actively followed for cancer treatment or on surveillance. Adherence to therapy and access to the oncology team was largely maintained with increased virtual visits. Due to concern for exposure and disruptions to work, social stressor screening and support are warranted. Continuing access to up-to-date information about COVID-19 is critical as the pandemic continues to evolve.