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Disparities in the Financial Burden of Pediatric Cancer: Household Material Hardship, Financial Toxicity, and Income Loss
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  • Erica Evans M,
  • Jackie Lin,
  • Jacklyn Sanchez-Alvarez,
  • Anurag Agrawal,
  • Lena Winestone
Erica Evans M
University of California San Francisco Department of Pediatrics

Corresponding Author:erica.evans@ucsf.edu

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Jackie Lin
University of California San Francisco School of Medicine
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Jacklyn Sanchez-Alvarez
University of California San Francisco Department of Pediatrics
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Anurag Agrawal
University of California San Francisco Department of Pediatrics
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Lena Winestone
University of California San Francisco Department of Pediatrics
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Abstract

Background Based on previous reports of disparities in financial burden following cancer, this study aims to characterize mechanisms of disparities experienced by caregivers of children with cancer, including the impact of work flexibility and social support. Methods Cross-sectional survey (in English or Spanish) of caregivers of children with cancer that assessed household material hardship (HMH), financial toxicity and income change. Results Of 156 caregivers surveyed, 32% were Hispanic and 32% were low income. Hispanic caregivers were more likely to report HMH and financial toxicity compared to non-Hispanic White and Asian (HMH 57% v. 21% v. 19%, p<0.001; financial toxicity 73% v. 52% v. 53%, p=0.07). Low and middle income caregivers were more likely to experience HMH and financial toxicity compared to high income (HMH: 68% low v. 38% middle v 8.7% high, p<0.001; financial toxicity: 81% v. 68% v. 44%, p<0.001). All income categories demonstrated significant increases in HMH one year after diagnosis. Seventeen percent reported >40% income loss, more of whom were low income than high income (27% v. 12%, p=0.20). Work flexibility and social support were associated with income and financial toxicity. Conclusion HMH, financial toxicity, and income loss are prevalent after a child’s cancer diagnosis, suggesting that screening should be incorporated into routine care. This financial burden disproportionately affects low income and Hispanic caregivers. Further research is underway to understand how safety net services are utilized by families, how best to support families with HMH, and how the financial burden of cancer has been impacted by COVID-19.
25 Feb 2023Submitted to Pediatric Blood & Cancer
25 Feb 2023Submission Checks Completed
25 Feb 2023Assigned to Editor
25 Feb 2023Review(s) Completed, Editorial Evaluation Pending
25 Feb 2023Reviewer(s) Assigned
18 Mar 2023Editorial Decision: Revise Minor
29 May 2023Submission Checks Completed
29 May 2023Assigned to Editor
29 May 20231st Revision Received
29 May 2023Review(s) Completed, Editorial Evaluation Pending
29 May 2023Editorial Decision: Accept